DH headed back down to the hospital. FIL had been in the ER, then ICU for a week. Tuesday they released him to a skilled nursing facility. The skin lesions and masses in his lungs and lymph nodes had improved but the masses in his brain hadn't. Cognitive functioning and energy level has continued to decline. He stopped eating and won't get out of bed. Mystery disease is still undiagnosed. Neurologist now thinks brain mass may be something different from unknown lung/skin/lymph disease and wants him in for neurosurgery tonight or tomorrow.
It's a "damned if you do, damned if you don't" proposition. No surgery looks headed for more brain decline and death. But no pain so far. Neurosurgery will mean certain pain, probable permanent cognitive function damage. On the other side probable diagnosis so possible treatment and long-term survival but at what level of cognitive function? Or perhaps it would just cause suffering and quicker death.
DH's mom will want him to make the call. He is completely torn up about it. We all want recovery or some chance at a pain free, moderately functioning life. But failing that we don't want him to suffer.