My GYN diagnosed me with antiphospholipid syndrome this morning. He told me not to Google it because it would scare me, but I told him I would anyways. I'm glad he warned me, LOL. In a weird way, it's like shit finally makes sense. My migraines, the m/c, the quickness with which I got DVTs off the NuvaRing, my random lupus diagnosis from a few years back (though I showed no real signs of it beyond the blood tests). Yup, it's not lupus, which I always knew in my gut. It's APS.
(Yes, I'd much rather have APS!)
Anyways, I'll be transferred over to a high-risk OB/GYN at the medical school within the next few weeks since H and I want to actively TTC. I'll be on low-dose aspirin the rest of my life and on regular-strength aspirin/twice daily injections of heparin when pregnant. He said upwards of 10% of women have APS so I don't feel so hopeless. He said it's manageable, I'm just going to be one of those women who has PITA pregnancies and about a gazillion ultrasounds. Oh, and a bunch of trackmarks/bruises on my belly from the heparin. No belly shirts for me then.
Post by dixienormous on Sept 26, 2013 14:52:57 GMT -5
I'm sorry about the diagnosis.
I did the lovenox/heparin shots while pregnant and it's not so bad. Unless you go to medical at Burning Man and they start questioning you and glaring at your husband. And I'm on aspirin as well because of my FVL and DVT/Superficial clot history.
I can't believe you can't wear belly shirts anymore. I am sad for mankind.
(((bowies))) It's always a good thing to have a diagnosis. I wish you had gotten it earlier, but I'm glad that you will be under close watch for the future. You rock, lady.