"Aspergers Sensory Funnel" Thoughts?

[ktzmoh]

My MIL forwarded this to me. Has anyone seen it? Tried their method/courses?
 Thoughts? I'm curious about it but we don't meet with J's therapist for another few months. We've been regressing a bit so I'm wanting to try some new tactics. 

[auntie]

Meh. These videos pop up on my feeds all the time.

I can appreciate what these young men are attempting to do, but I'll rely on DS's thoughts around what he needs and his professional team for supplying answers around meeting those needs.

One problem with so called spokesaspies is that they generally don't have particularly robust Theory of Mind and tend to assume their experiences, opinions and thoughts to be universally held by those who share the same dx. Much of Temple Grandin's early books trend into this kind of assumption- for instance, that all person with autism are visual thinkers. I spent years attempting to disavow well meaning teachers who read on of Dr. Grandin's books and came away believing all those with Aspergers were visual learners/thinkers when it was obvious DS wasn't.

This particular video is interesting because their funnel seems to be very similar to the concentric circle chart in Parenting Your Aspergers Child by Sohn and Grayson which was published in 2005 but was being used in their conferences at least as far back as 1999. They did put a slight spin on it with to emphasize "sensory" which is sort of odd given their ages. We only ever addressed sensory with a kind of behavioral approach- we never did OT but DS does quite well these days.

If you have a child who meets the criteria for the syndrome formerly known as Aspergers, this might be an excellent book for you to read. It breaks down AS into subtypes and explains the root of the challenging behaviors as well as real world interventions that can be used to address them. Life changing for us; I'm pretty sure DS is quoted on page 63.

The OASIS Guide to Aspergers Syndrome is another excellent resource for considering behavioral interventions if you haven't read it.

[ktzmoh]

Oct 16, 2014 10:02:45 GMT -5 auntie said:

Meh. These videos pop up on my feeds all the time.

I can appreciate what these young men are attempting to do, but I'll rely on DS's thoughts around what he needs and his professional team for supplying answers around meeting those needs.

One problem with so called spokesaspies is that they generally don't have particularly robust Theory of Mind and tend to assume their experiences, opinions and thoughts to be universally held by those who share the same dx. Much of Temple Grandin's early books trend into this kind of assumption- for instance, that all person with autism are visual thinkers. I spent years attempting to disavow well meaning teachers who read on of Dr. Grandin's books and came away believing all those with Aspergers were visual learners/thinkers when it was obvious DS wasn't.

This particular video is interesting because their funnel seems to be very similar to the concentric circle chart in Parenting Your Aspergers Child by Sohn and Grayson which was published in 2005 but was being used in their conferences at least as far back as 1999. They did put a slight spin on it with to emphasize "sensory" which is sort of odd given their ages. We only ever addressed sensory with a kind of behavioral approach- we never did OT but DS does quite well these days.

If you have a child who meets the criteria for the syndrome formerly known as Aspergers, this might be an excellent book for you to read. It breaks down AS into subtypes and explains the root of the challenging behaviors as well as real world interventions that can be used to address them. Life changing for us; I'm pretty sure DS is quoted on page 63.

The OASIS Guide to Aspergers Syndrome is another excellent resource for considering behavioral interventions if you haven't read it.

This is very helpful. I just got both books. We made so much progress last year, but much of that was finally understanding that what was going on with him was ASD related, getting the IEP, and bringing our lives down from constant crisis mode to manageable chaos. We have been doing really well, but that's relative to a pretty traumatic few years. Now that we are settling in to dealing with the long term struggles, we are really asking a lot of questions about what's the next step in the evolution of how we parent him. Of course we will discuss all of this with his therapists, but we don't meet with her again for a little while.

[auntie]

ktzmoh

One thing that helped us decide where to focus was to figure out where we wanted/expected DS to be in 5 years and work on the skills he'd need to thrive in that place. There were a lot of two steps forward/one step back but over time he grow and matured. He's in college now and working part time. Most of the time he's less drama than my adult niece who lives with us. Although in her defense, she's in a pretty devatating place right now.

The other piece was creating a social group for him. Kids who are loners are more vulnerable to being bullied. We did a mix of scouts and music when we were younger, now he is mostly friends with the train guys he works with.