Forrest update, PIP added in OP :)

[janegold]

MESSAGE TO THE UNIVERSE:

Forrest and Squirrelyfamily have been through enough! Enough!

[jlt19]

I'm glad it doesn't sound like something super serious, but I'm sorry you don't have concrete answers. Isn't he pretty old to be dx with Asperger's?

[janegold]

I hope things get sorted out easily and quickly, Squirrely.

[gogadgetgo]

I hope you get some more concrete answers soon! (((hugs)))

[margarita]

I'm glad it sounds like it's nothing serious. I hope you get to go home soon!

[cville]

I hope you get some answers. I'm glad that he hasn't had any more seizures (right?).

You all need a FREAKING BREAK already.

[venice2007]

Continuing to pray for F!

[compassrose]

Good thoughts to all of you! I hope they get this figured out quickly!

[cuddlyevil]

I hope you get to go home soon!

[aussiecrush]

I'm glad his noggin looks good but I wish they'd had better answers for you. Hope Forrest is feeling better and home soon.

[BicycleBride]

Jan 14, 2015 13:54:54 GMT -5 squirrelymom said:

Jan 14, 2015 13:45:51 GMT -5 cville said:

I hope you get some answers. I'm glad that he hasn't had any more seizures (right?).

You all need a FREAKING BREAK already.

Hes still having spastic movements on the right side and slurred speech, but it's not quite as pronounced as yesterday.

This is probably a dumb question but any chance it might just be a complicated migraine? I have a friend through a migraine community that has symptoms like this (although they only last a few hours).

[cville]

Jan 14, 2015 13:54:54 GMT -5 squirrelymom said:

Jan 14, 2015 13:45:51 GMT -5 cville said:

I hope you get some answers. I'm glad that he hasn't had any more seizures (right?).

You all need a FREAKING BREAK already.

Hes still having spastic movements on the right side and slurred speech, but it's not quite as pronounced as yesterday.

 I'm sorry, squirrely.  Poor Forrest.  Poor you!

[underwaterrhymes]

Ugh. I'm so sorry you're still going through all of this shit. You guys need a break.

[karmasabiotch]

I wish I could afford to send you to a spa for the weekend. Hugs to you and F...

[pittsmcgee]

I'm so sorry. You guys can't catch a break

[CurlyQ284]

I'm so sorry. I hope you get some answers soon, you all have been through enough!

[shell24]

I'm so sorry. I hope you get some answers and relief soon.

[CloudBee]

I hope they find the root of the cause, and that there's an easy fix.

I went through a few years of crazy auro and vision issues after having my heart patched up with an implant. I went in for IV magnesium sulfate every 2-4 weeks for years, and it helped a ton. The auro could be physically debilitating, I had trouble walking, and landed up in the ER several times.

Sorry it's been such a scary week for you guys.

[caddywompus]

I'm so sorry. Hopefully all his symptoms will resolve soon.

[Marle]

Well it's a relief to know there is nothing immediately harmful physically but it sucks not having an answer and having to do trial an error. Especially with meds.

I hope you figure this out soon and thoroughly. (Hugs)

[auntie]

Jan 14, 2015 13:43:39 GMT -5 jlt19 said:

 Isn't he pretty old to be dx with Asperger's?

Not at all.

People with Aspergers can fly blow the radar for a long time; especially if they have comorbid mental health issues that have symptom overlaps. My DS was identified just before he turned 7; my cousin who we always thought DS was a mini-me to, was dxd after at the age of 40. My PCP's quirky older brother didn't get a dx until he was 52 and struggling professionally and in his marriage. I swear my cousin's wife is on spectrum but her primary presenting dx is bipolar and her psychiatrist ascribes all her symptoms and behaviors to that. 


squirrelymom

I moderate a couple of ASD forums realted to Aspergers and higher functioning forms of ASD. If you have any questions or want book suggestions, page me. I'm sort of surprised they said Aspergers given that it no longer exists in the DSM; it's been subsumed by ASD. 

Are they suggesting he has Aspergers instead of his previous condition or in addition to? I've known of a few families where kids were improperly dxd with OCD, ODD, ADHD before getting identified as being on spectrum. Do they think the symptoms that led to his hospitalization are related to tardive dyskenesia? 

[Deleted]

What a cutie! Hope you all get some answers soon. Thinking of you.

[textbookcase]

He looks great! Always thinking of you guys!

[daisybuchannan]

Good thoughts to you, and what a handsome boy!

[wambam]

Forrest has become such a handsome young man! I'm glad nothing serious was wrong on the MRI and that he appears to be in good spirits.

*hugs and hair pets*

[mcsangel2]

Jan 14, 2015 14:00:26 GMT -5 BicycleBride said:

Jan 14, 2015 13:54:54 GMT -5 squirrelymom said:

Hes still having spastic movements on the right side and slurred speech, but it's not quite as pronounced as yesterday.

This is probably a dumb question but any chance it might just be a complicated migraine? I have a friend through a migraine community that has symptoms like this (although they only last a few hours).

This is a good question, I have a cousin who suffers from these, although I don't think she's had one quite this severe (she has had a post partum stroke, though). Does Forrest suffer from migraines?

[auntie]

Jan 14, 2015 14:43:40 GMT -5 squirrelymom said:

Jan 14, 2015 14:39:35 GMT -5 auntie said:

No, the Abilify is known to cause these symptoms in very rare cases (Pisa Syndrome) and since it's exceptionally rare, that's probably what he has. Lol.

In any case, it's the most likely culprit so they're eliminating it first to see if it helps. He's had a few doses withheld already and it seems slightly better today. 

He would go for the obscure side effect. I'm so glad he's improving already. One of my friend's DS's had priapism related to Abilify- poor kid was about 14 and mortified to discuss with his parents. Fortunately it ended well. First I'd ever heard of that one.

Cute kid. DS has that tee as well. 

[rosiebear]

He has a beautiful smile! I'm glad some very serious stuff was ruled out; hope you can get some definitive answers soon.

[UnderProtest]

I hope you guys get some answers soon (and that you can go home). Hugs.

[kirra]

I'm glad the MRI came back ok. I hope dropping the Abilify is an easy fix.

I know several people who weren't diagnosed with Aspergers until they were older than F.