Check in!

[panicked]

How's everyone doing? I'm doing well with my GI stuff mostly, but I'm having a lot more neuro symptoms lately. I should see my PCM soon for a referral to get food allergy testing done.
wowhead- how are you doing?

[wowhead]

Mar 18, 2015 10:12:28 GMT -5 panicked said:

How's everyone doing? I'm doing well with my GI stuff mostly, but I'm having a lot more neuro symptoms lately. I should see my PCM soon for a referral to get food allergy testing done.
wowhead- how are you doing?

I can't imagine which is worse, GI stuff or neuro.

I don't want to jinx myself but I'm doing well.  I've now added oatmeal, potato skins, sesame seeds and even had some garlic bread last night.  I'm still having some fatigue but it's significantly better than it was.

[panicked]

Mar 18, 2015 12:57:27 GMT -5 wowhead said:

Mar 18, 2015 10:12:28 GMT -5 panicked said:

How's everyone doing? I'm doing well with my GI stuff mostly, but I'm having a lot more neuro symptoms lately. I should see my PCM soon for a referral to get food allergy testing done.
wowhead- how are you doing?

I can't imagine which is worse, GI stuff or neuro.

I don't want to jinx myself but I'm doing well.  I've now added oatmeal, potato skins, sesame seeds and even had some garlic bread last night.  I'm still having some fatigue but it's significantly better than it was.

That's awesome!!!!

[kirra]

I'm doing ok. Too many doctors appts, which always ramps up my anxiety, but that will be over soon (for about a month, anyway).

Physically some things are improved and some are rough.

[Deleted]

I'm back to having tingling in my fingers and toes and my legs are tired walking up stairs. With the Cymbalta I was feeling much better. I thought it was my cure all.

Neuro wants to do nerve conduction tests if I'm not better in 2 weeks (I wanted to wait a little before jumping to that yet).

I just wish I knew what it was. I shouldn't feel this tired and sore.

ETA- The neuro did say he thinks I have raynaud's but doesn't know if that has anything to do with my "issues"

[panicked]

Mar 30, 2015 6:01:43 GMT -5 carrotsmakemefat said:

Is it weird to post days later?

Lyme symptoms have migrated. And by that I mean my brain fog issues are less, but my aches and pains are through the roof the last couple weeks. I feel like I was having ok and bad days (improvement since it was all bad days). Now it's back to just being blah

I started a symptom journal awhile back to try and see if I have any noticeable patterns. So far there really isn't one per say (unrelated to the typical medicine ups and downs) but it is helping me cope. Even to write down for 2 minutes a day is therapeutic.

I'm effing annoyed and still bitter about how unresearched Lyme is. We deserve accurate testing. And I'm bitter I went years before a doctor knew what to do with me. It's so unsettling to know that doctors can't always help you, and many don't even bother to ask the right questions.

(Therapy over for the day)

I completely understand where you're coming from. I'm in the "hey, you have celiacs! And a whole bunch of other stuff we don't know anything about!" It's frustrating. I'm sorry you're still feeling poorly.