Check in time

[wowhead]

How is everyone doing?  Any new news?

I've been doing mostly okay.  I've been able to add a couple of new foods but if I over do it or eat something that doesn't agree with me fatigue will totally kick my ass. This may be as good as it gets. I'll be discussing it again with my GI and PCP (who also has Crohns) in July. 

[panicked]

Glad you're adding new foods!! Fingers crossed you can continue on this track!

I'm okay. My stomach has calmed down considerably, which is nice. However, I'm not eating much at all, so I'm losing weight. I'm back on FODMAP, so I'm eating the same thing every single day. I'm bored and unhappy, but at least I don't feel like vomiting all the time.

[razzles]

I'm doing alright. I don't have any official diagnoses yet but it seems highly likely according to my doctors that I have both fibromyalgia and rheumatoid arthritis. I suppose that is totally awesome to find out at the same time. I'm working on cutting more carbs which seems daunting but I will do anything that may help. I'm hoping that a change in diet, an increase in light exercise, and the new meds will help me get back into a better spot both physically and emotionally as this is all so new for me.

[kirra]

Not great, but not awful.

The MCAD is much better. Some other things are worse.

[nursewife]

The last 2 weeks have been rough. I'm exhausted and so sore. Of course I can hardly sleep which just makes everything worse. I'm hoping things go well when I see another interventional pain specialist in June.

[Deleted]

I am in a bad phase at the moment. Arms and legs exhausted and I can barely keep my eyes open all day.

Blood work came back and I am very low in Vitamin D. Taking some mega supplements. We shall see.

[panicked]

May 19, 2015 8:05:50 GMT -5 calamity said:

I am in a bad phase at the moment. Arms and legs exhausted and I can barely keep my eyes open all day.

Blood work came back and I am very low in Vitamin D. Taking some mega supplements. We shall see.

I think you need some sunshine. Specifically island sunshine. On a beach. With a piña colada. ;-)

[Deleted]

May 19, 2015 9:44:21 GMT -5 panicked said:

May 19, 2015 8:05:50 GMT -5 calamity said:

I am in a bad phase at the moment. Arms and legs exhausted and I can barely keep my eyes open all day.

Blood work came back and I am very low in Vitamin D. Taking some mega supplements. We shall see.

I think you need some sunshine. Specifically island sunshine. On a beach. With a piña colada. ;-)

OMG yes that sounds amazing.  Fuck paying off that credit card with my bonus, I'm leaving the family behind and "getting better" LOL!  (hot)

The Dr. ordered 50,000 IU three times per week until my numbers get back up.  That's a hell of a lot of vit D!

[panicked]

May 23, 2015 19:30:23 GMT -5 carrotsmakemefat said:

I don't have any real updates to talk about. If been on my lyme treatment for almost a year (late June marks one year). I see my PCP monthly and she's awesome, but I'm wondering what else I can do to help this along. I mean, if I compare how I was last year compared to now I don't feel so helpless. The abx have taken the edge off. But I'm not better by any means. I feel like I am maintaining now without a lot of progress.

I will say that journaling and marking my good/ok/bad days does help frame any progress I'm making.

I really want to have a kid. So getting better is all I can do. Failure is not an option

You're rocking this, Carrots!

[razzles]

May 23, 2015 19:26:41 GMT -5 carrotsmakemefat said:

Can you ask for a western blot for lyme? Not an elisa, ask for the WB

Did they do blood work for RA?

I personally dislike the fibro diagnosis. Because they don't know what else to diagnose you with. It's frustrating!

I will definitely be asking for the western blot test for lyme at my next appointment which happens to be next week. I don't really like the fibro diagnosis at the moment either but at least it is a starting point for me to learn from I suppose. 

They did do blood work for RA but my numbers are normal which my rheumatologist told me happens fairly frequently I guess. I'm just not sure what to think at the moment but I'm staying as positive as possible.