Check In?

[panicked]

How's everyone doing/feeling/coping? Any new things going on?

[panicked]

Sept 5, 2015 15:05:23 GMT -5 carrotsmakemefat said:

panicked

This is a big month for me. I go to see the lyme specialist (LLMD) in about a week. Anyone who knows me or has connected with me here knows that I've been researching and waiting for "the one." And I think I found her. So I'm excited! Not happy about the costs but it's a good starting place.

I'm also doing a "diet" but it's not what you think. It's essentially taking away processed foods and adding in super foods and high value nutrition like Biehls Broth. I'm supposed to avoid foods that are flour based, most dairy, non organic meats, and add in the higher value stuff and fruits/veggies. It isn't nearly as restrictive as I thought it would be. I'm doing it a step at a time though. I'm not going to toss away food items but I'm replacing with the good stuff. And I got all the ingredients to drink the broth 2 X a day.
The only "bad" items I boug at the store today was a mini GF pizza (we do pizza once a week) and my Fage yogurt (technically not ok bc it's not organic, but it helps settle my stomach so I'm going for it). I intend to do the best I can and try to succeed.

The whole idea is to be kind to your body and listen to it.

www.body-expressions.com/newsletters/newsletter/2565078/61304.htm

Awesome!!!!! PLEASE let me know how the appointment goes!!!

[midnightrae]

My medications are finally fixed and I am feeling great.

[tacom]

hi. I've never posted here but the board was mentioned on the IBD board.

my story is that my bowel ruptured and I needed to have emergency surgery when I was 23. they resected a portion of my intestines, sent the specimen to pathology, and I was diagnosed with Crohn's disease. I have been on immunosuppressants (imuran and remicade infusions) since 2013, but I still work in a hospital and take the subway because I like to live on the edge. I've had a couple flares recently and have another abdominal MRI coming up to see if we need to try another medication. overall, I'd still say I'm in good health. I have learned how to take care of myself better (mainly prioritizing sleep above all else) and know when to cancel plans or take it easy. I also have sleep apnea and am working on titrating my oral appliance (this ridiculously expensive piece of plastic that pushes my jaw and tongue forward to keep my airway open during REM sleep) to make it effective. I'm so excited at the idea of getting more restful sleep!

I just had a brain MRI last week because I had convinced myself the crohn's was causing inflammation in my brain due to various weird symptoms, but I'm super happy to report my brain is BEAUTIFULLY NORMAL.

[panicked]

Sept 22, 2015 15:41:34 GMT -5 tacom said:

hi. I've never posted here but the board was mentioned on the IBD board.

my story is that my bowel ruptured and I needed to have emergency surgery when I was 23. they resected a portion of my intestines, sent the specimen to pathology, and I was diagnosed with Crohn's disease. I have been on immunosuppressants (imuran and remicade infusions) since 2013, but I still work in a hospital and take the subway because I like to live on the edge. I've had a couple flares recently and have another abdominal MRI coming up to see if we need to try another medication. overall, I'd still say I'm in good health. I have learned how to take care of myself better (mainly prioritizing sleep above all else) and know when to cancel plans or take it easy. I also have sleep apnea and am working on titrating my oral appliance (this ridiculously expensive piece of plastic that pushes my jaw and tongue forward to keep my airway open during REM sleep) to make it effective. I'm so excited at the idea of getting more restful sleep!

I just had a brain MRI last week because I had convinced myself the crohn's was causing inflammation in my brain due to various weird symptoms, but I'm super happy to report my brain is BEAUTIFULLY NORMAL.

Welcome! Super glad your brain is normal! :-)