How is everyone doing?

[midnightrae]

NFT

[panicked]

One step forward, one step back here. I've been glutened twice in the past few weeks by things that were supposedly certified gf. It's caused a whole host of issues but I think the worst is over. No other big issues right now, thank goodness.

[wowhead]

I've felt like ass for the better part of the last month. I've been trying to blame it in a myriad of other things because I don't want to admit it's a Crohn's flare. I'm finally sucking it up and calling my GI tomorrow. Just the thought of 8 weeks of steroids makes me want to cry.

[panicked]

Dec 27, 2015 12:40:17 GMT -5 wowhead said:

I've felt like ass for the better part of the last month. I've been trying to blame it in a myriad of other things because I don't want to admit it's a Crohn's flare. I'm finally sucking it up and calling my GI tomorrow. Just the thought of 8 weeks of steroids makes me want to cry.

Aw man wowhead, I'm sorry. That really sucks. I know how hard steroids are on your body. :-(

[wowhead]

Dec 27, 2015 10:15:06 GMT -5 panicked said:

One step forward, one step back here. I've been glutened twice in the past few weeks by things that were supposedly certified gf. It's caused a whole host of issues but I think the worst is over. No other big issues right now, thank goodness.

That just sucks. How does that even happen?!  You have to be beyond pissed. 

[wowhead]

Dec 27, 2015 13:34:56 GMT -5 panicked said:

Dec 27, 2015 12:40:17 GMT -5 wowhead said:

I've felt like ass for the better part of the last month. I've been trying to blame it in a myriad of other things because I don't want to admit it's a Crohn's flare. I'm finally sucking it up and calling my GI tomorrow. Just the thought of 8 weeks of steroids makes me want to cry.

Aw man wowhead , I'm sorry. That really sucks. I know how hard steroids are on your body.

I'm trying to find the bright side. Now I don't have to go spend 6 days with the ILs. 

[panicked]

Dec 27, 2015 14:08:09 GMT -5 wowhead said:

Dec 27, 2015 13:34:56 GMT -5 panicked said:

Aw man wowhead , I'm sorry. That really sucks. I know how hard steroids are on your body.

I'm trying to find the bright side. Now I don't have to go spend 6 days with the ILs. 

Ha! Silver lining for sure!

And yeah, I'm really pissed I got glutened. It's annoying and I feel like I'm just undoing not all the hard work I've done to get my gut back to normal.

[wowhead]

Oh, well this is fun. Not a Crohn's flare. I have C. Diff.

[panicked]

Jan 2, 2016 13:29:00 GMT -5 wowhead said:

Oh, well this is fun. Not a Crohn's flare. I have C. Diff.

Oh nooooooo!!!!!! I'm SO sorry, wowhead. That is shitty, literally and figuratively. ;-) what meds do they have you on?

[wowhead]

Jan 2, 2016 16:58:47 GMT -5 panicked said:

Jan 2, 2016 13:29:00 GMT -5 wowhead said:

Oh, well this is fun. Not a Crohn's flare. I have C. Diff.

Oh nooooooo!!!!!! I'm SO sorry, wowhead . That is shitty, literally and figuratively. ;-) what meds do they have you on?

Flagyl for 14 days which makes me feel like shit and gives me hairy tongue. Happy fucking New Year. 

[panicked]

Jan 2, 2016 17:30:14 GMT -5 wowhead said:

Jan 2, 2016 16:58:47 GMT -5 panicked said:

Oh nooooooo!!!!!! I'm SO sorry, wowhead . That is shitty, literally and figuratively. ;-) what meds do they have you on?

Flagyl for 14 days which makes me feel like shit and gives me hairy tongue. Happy fucking New Year. 

:-( do they have you on any good probiotics?

[wowhead]

Jan 2, 2016 17:30:48 GMT -5 panicked said:

Jan 2, 2016 17:30:14 GMT -5 wowhead said:

Flagyl for 14 days which makes me feel like shit and gives me hairy tongue. Happy fucking New Year. 

do they have you on any good probiotics?

Nope. Just taking the OTC ones. 

[panicked]

Well hopefully this is a quick and easy round of treatment. C diff sucks.

[panicked]

Jan 11, 2016 6:57:47 GMT -5 carrotsmakemefat said:

I can't believe that June will be the 2 year anniversary of my Lyme diagnosis. My blood work still shows that I am CDC + despite heavy abx. I'm emotionally preparing myself for my worst fear (having it get a PICC line and IV abx). I'm in therapy now too because it's so overwhelming to me. Plus nothing else seems to be going well in my life.

It could be so much worse I'm hanging in there despite everything. I'm generally not feeling well, but we all knew that

On probiotics - for OTC I will really live the Natures Way brand that comes in the frig. But my doctor has me on Zymogen probiotics now and I really love those. Doesn't need to go in the frig and I can just carry it around with my other supplements and abx. Its a higher price tag, but worth it IMO. I think it's hard to find though. I get it from a website that I can't recall right now, but if anyone wants it, let me know and I'll look it up for you. I pay $35 for a 30 day supply or $70 for 2 months.

Aw Carrots, I'm sorry you're going through this. Lyme is a bitch. I know you're going to get through whatever comes your way.