Hugs and prayers to your little one and your family. I am so sorry you are going through this. Very thankful you have support with you to lean on. Post here as you need for that anonymous support as well. (((obladi)))
Huge hugs! It sounds like your team is on it and prepared. Have they mentioned nitric in addition to the vent? That seemed to help my son when we were facing ECMO last PICU stay. Continued prayers, take it minute by minute, hour by hour.
Huge hugs! It sounds like your team is on it and prepared. Have they mentioned nitric in addition to the vent? That seemed to help my son when we were facing ECMO last PICU stay. Continued prayers, take it minute by minute, hour by hour.
They haven't talked to us directly about it. She is on so so so many meds though that it is possible. What does it do? Sorry I know I can look it up but I can't google anything right now because everything I find makes me more hysterical. I know they have been giving her something in her iv to try to lower her co2 because they are having trouble getting it down on this type of vent.
Huge hugs! It sounds like your team is on it and prepared. Have they mentioned nitric in addition to the vent? That seemed to help my son when we were facing ECMO last PICU stay. Continued prayers, take it minute by minute, hour by hour.
They haven't talked to us directly about it. She is on so so so many meds though that it is possible. What does it do? Sorry I know I can look it up but I can't google anything right now because everything I find makes me more hysterical. I know they have been giving her something in her iv to try to lower her co2 because they are having trouble getting it down on this type of vent.
Eta I think I lost my post, is this the steroid you talked about in my other post? She has been on steroids since yesterday but I don't believe they think they are having any great effect since the real problem is one of the 2 viruses vs the pneumonia or the asthma type issues they think now she might have now
Huge hugs! It sounds like your team is on it and prepared. Have they mentioned nitric in addition to the vent? That seemed to help my son when we were facing ECMO last PICU stay. Continued prayers, take it minute by minute, hour by hour.
They haven't talked to us directly about it. She is on so so so many meds though that it is possible. What does it do? Sorry I know I can look it up but I can't google anything right now because everything I find makes me more hysterical. I know they have been giving her something in her iv to try to lower her co2 because they are having trouble getting it down on this type of vent.
I understand the stay away from Google thoughts. From my basic understanding it opens up the lungs more and balances CO2. When your lungs work really hard(like when your sick) you can develop pulmonary hypertension and it's supposed to help with that. It also dilates any veins or arteries to help blood flow better between heart and lungs. Have they checked her heart with echo or EKG? It's so scary when the Drs are scratching their heads. They may need to reculture to see if she's gotten any new growth. My son spent 4 days on full vent support with an O2 sat of 75 and the Drs had no idea what to do. They took another culture and he grew a bacteria that only responds to a certain antibiotic. Less than 12 hrs after starting the right med, he was a different kid.
Huge hugs! It sounds like your team is on it and prepared. Have they mentioned nitric in addition to the vent? That seemed to help my son when we were facing ECMO last PICU stay. Continued prayers, take it minute by minute, hour by hour.
They haven't talked to us directly about it. She is on so so so many meds though that it is possible. What does it do? Sorry I know I can look it up but I can't google anything right now because everything I find makes me more hysterical. I know they have been giving her something in her iv to try to lower her co2 because they are having trouble getting it down on this type of vent.
Eta I think I lost my post, is this the steroid you talked about in my other post? She has been on steroids since yesterday but I don't believe they think they are having any great effect since the real problem is one of the 2 viruses vs the pneumonia or the asthma type issues they think now she might have now