T&Ps Please UPDATE 4

[hermione]

I posted the other day about my BFF's 4yo daughter. Since then her unexplained fever has been diagnosed as a septic hip. She is currently undergoing a fully-sedated MRI to determine if she needs emergency surgery.

This is all so unbelievable. We were running around with this kid on Sunday - climbing on the playground, riding a train, chasing bubbles. Now she can't walk correctly. Please send any positive thoughts or prayers you have.

Update: the MRI was clean so it's not a septic hip. At first I was like, oh yay! Then my friend burst into tears and said that's not good news really.

Basically the doctors think it's a severe blood or bone infection. It will take 24-48 hours for cultures to come back. They hope to know more then.

The doc my BFF likes was very straight forward. When asked if this was something that will clear up and they might never know what it was, the she said, "Absolutely not. You will be here until we know. That could be tomorrow or it could be in a month. We don't know."

Infectious disease and oncology are coming to see them too I guess? I was unclear and didn't want to ask too many questions because BFF was so upset.

Continued T&Ps, please.

UPDATE 2: caveat: I don't really understand a lot of the medical aspects and could possibly be getting some terms confused.

BFF just called. After a great morning, things in the later part of the day have not been. They ran additional tests late afternoon. Preliminary results show her white blood cell count has gone up another 6,000. The percentage of neutrophils (the white blood cells that fight bacteria) are up to 85%. Her fever is back and less controlled by ibuprofen.

Given the antibiotics she's on, docs expected at least some improvement. There doesn't seem to be any real consensus - or even ideas - about how to proceed.

There don't seem to be any other markers for cancer. 

BFF has not left the hospital and, of course, is on edge. I've made it very clear we will do whatever they need. She just wants an ear to talk to once she's alone in the room at night with her DD asleep. So I'll be that.

The other child in the room is a 5 month old boy with hydrocephalus. He hasn't had any visitors so far and BFF is struggling with that too. I hope the weekend means someone can visit him for at least a little while.

Please keep sending positive thoughts and prayers. I think there is power in that kind of positivity.

UPDATE 3: Her white blood cell count is up another 9,000. There are now a rheumatologist, oncologist, cardiologist, infectious disease, and hemotologist on consult. Tomorrow she will have an echocardiogram and a bone marrow sample taken.

They are specifically looking for atypical Kowasaki Disease and bone marrow cancer - all speculative still. There are still no real cancer indicators (thank goodness).

I'm at a loss as to how to help my friend. She is pretty much hsterical with fear at this point (of course). This is terrifying and heart breaking all rolled into one.

Please keep praying. Please.

UPDATE 4: You Guys! Good News!!!

Not to be overly dramatic but my BFF called me at 5:30 hysterical and fearing for her daughter's life. So, while there are still obviously serious concerns, this is wonderful news. This poor little girl has been through so much, especially today - fully sedated and a multitude of horrifying tests. Here is a paste of BFF's texts to me in the last few minutes:

BFF: Great news. Got some test results and all good. Still waiting for more results but very confident they know what it is and how to treat.
Me: Oh thank god!
Me: WTF is it???
BFF: Something auto immune. Don't know what yet. Most likely Steroids as a treatment. After that should be able to determine if it's a one time thing or not.


Please keep praying that this is a one time thing with a full recovery.

[Deleted]

Oh wow, sent.

[chickens987]

I am so sorry. I hope she's going to be just fine.

[shelbyann]

How terrifying. Sending some good vibes their way.

[mrssandro]

Sending prayers!!

[Deleted]

May 12, 2016 9:11:01 GMT -5 hermione said:

I posted the other day about my BFF's 4yo daughter. Since then her unexplained fever has been diagnosed as a septic hip. She is currently undergoing a fully-sedated MRI to determine if she needs emergency surgery.

This is all so unbelievable. We were running around with this kid on Sunday - climbing on the playground, riding a train, chasing bubbles. Now she can't walk correctly. Please send any positive thoughts or prayers you have.

Oh my goodness! I'm glad they eventually went to the ER. Your poor BFF must be freaking. Is she back yet?

[countthestars]

Oh no! Thinking of her

[dcn]

Oh my goodness. Thinking of them - I hope she is ok!

[Noblegirl]

Thoughts and prayers!

[cincodemayo]

Sending my best to you and your friend.

[bearbaby]

T&Ps that she is on the road to a full recovery very very soon.

[darnkatz]

Prayers said.

[justjen]

Sending healthy thoughts her way!

[hermione]

May 12, 2016 9:12:45 GMT -5 @sessalee said:

May 12, 2016 9:11:01 GMT -5 hermione said:

I posted the other day about my BFF's 4yo daughter. Since then her unexplained fever has been diagnosed as a septic hip. She is currently undergoing a fully-sedated MRI to determine if she needs emergency surgery.

This is all so unbelievable. We were running around with this kid on Sunday - climbing on the playground, riding a train, chasing bubbles. Now she can't walk correctly. Please send any positive thoughts or prayers you have.

Oh my goodness! I'm glad they eventually went to the ER. Your poor BFF must be freaking. Is she back yet?

Yes. She took the first flight out the next morning.

[bcarp30]

Many T&P

[jeaniebueller]

Sending good thoughts.

[Deleted]

sending t&p for that baby girl and her parents!

[aspentosh]

Sending good thoughts!

[kdubs923]

Oh, poor baby. I'm glad her Mom is back with her. I'll be thinking of them. Keep us posted!

[miamigirl]

Omg, sending good thoughts!

[broadsheet]

Oh my gosh. Sending all my good vibes.

[pooh8402]

Oh no! Prayers sent for her and the family!

[pinotgrig]

Sending T&P to her. That's scary how quickly it happened.

[MadamePresident]

Will do

[greycat]

Oh my goodness! Sending T&Ps!

[brooklyn]

How terrifying! Keeping her in my thoughts and prayers.

[kershnic]

How scary!! I hope she is fully recovered and healthy soon.

[nikki25]

How horrible:( Wishing her a speedy recovery.

[quesyrah]

Oh my gosh, how terrifying. Sending good thoughts her way.

[ssmjlm]

Sending T&Ps