Surgery update cross-post

[berbles]

I posted on ML, but thought I'd update you guys as well.

Backstory - I had a 10cm cyst removed laproscopically last Tuesday.

The good news is, it's not cancer. But that's pretty much the end of the good news.

The cyst was an endometrioma, caused by severe endometriosis. It's everywhere. It's adhered to my bowel and to my bladder. She couldn't even tell what's going on with my fallopian tubes because she couldn't see them at all from above.

Additionally, she can't tell whether I have a severely septated uterus (think heart-shaped) or a bicournate one (think bunny ears). Neither is ideal for getting pregnant/maintaining pregnancy. It can be done, but it sounds like it will probably never happen without pretty major intervention. Which I don't think my insurance covers. H and I will have to have a real discussion about this. I don't think he wants to do IVF. But I DO know that he very much wants kids. This is going to be really hard.

Next step: get an MRI done to get a clear picture of the overall shape of the ute and see how bad the endo is around my ovaries. She did say that the fallopian tubes appear to be clear; they could see fluid leaking out of them when they did the laproscope, but that doesn't mean that the space between the ovary/follicle/fallopian tube is conducive to getting the egg where it needs to be.

Looks like we will may never get pregnant without intervention. I'm really sad about it.

[mimosas]

:-(

I'm so sorry to hear this. I was just reading the long cycles post and was feeling the camaraderie between us long cyclers and now I feel way emotional over this news.

({) (})

[thoseareradishes]

I'm sorry Berbles. I hope the MRI gives you some encouraging news.

[nevafaye]

I hope you get some good news and you and DH are able to come to a decision you're both comfortable with.

[berbles]

Well, a bit of good news. My mom sent me an excerpt from the CA Health & Safety code, that basically says infertility treatments must be covered, excluding IVF. That makes me feel a little better.

[sunflower22]

I commented in the other post, but I'll add a ({) (})

[jessuhmarie]

Wow. I am so sorry ): I really hope that you get some answers soon on what it'll take to get pregnant.

[winecheery]

I'm so sorry berbles. I mean yay that it's not cancer, but the other shit---poor, poor you. :-( I hope you get more promising news as things develop. There are lots of different ways to have a child nowadays thanks to science, and adoption being a more, and more common too. You will have a kiddo somehow.

I do get that it's not how you wanted it to be at all...I hope you feel better soon.

[Deleted]

What devastating news. I hope that the ultrasound will shed some more light and give you some more options. Whatever happens, we're all here for you :-)

[jenn1298]

I am sorry that you are going through this. Hopefully you will get some more good news (or at least answered questions) soon.

[prairieglitter]

Hugs to you. I'm glad to hear it wasn't cancerous, though.

I wanted to add that I live in the Midwest and we have a semi-famous fertility clinic here that I've had many acquaintances use. The man who started it helped develop a new technology called NaPro technology. It's now used in fertility clinics across the US and has given many women with endo great results. Obviously, I'm not an expert so I may not be giving the best description, but I know some people who have had amazing results with it.

Just thought I would share this! And I'm sorry you're going through all this.

www.naprotechnology.com/