Tuesday stuff

[tennisgal]

Tuesday randoms here

[imimahoney]

Corinne's fever isn't as high as it was last night (103.5) but she is still sick and miserable. Ugh, I hope she doesn't get everyone else sick.

[chirpchirp]

I'm taking I to the zoo today with my nephew and SIL. It's a beautiful sunny day, but so cold!

W had her family party and very first music recital on Saturday and both went great!

[TrudyCampbell]

This process with our case against the DOE is taking years off of my life. I feel physically ill today.

[sunshineluv]

This morning while getting ready, Annabelle asked me to buy her two pink hoodies, a new bunk bed, and to take her back to great wolf lodge.

Aim high little girl, lol.

[sunshineluv]

I either have allergies or am getting a cold, I am really hoping its allergies.

We have fun plans this Saturday (beer bourbon and bbq festival for DH's bday with no kids) I don't want to be sick....

[muppetinma]

While DH is on a show, his hours are insane. He easily does 14+ hours a day. However, all of his meals are catered. He doesn't eat anything at home during the week, and on the weekends, we tend to eat out a lot. Now that DH is in between shows, I have to start feeding him again. I just went to the grocery store and had to shop for all three of us and nearly fell over at the sticker shock. Andrew doesn't eat much and I don't eat meat, so our grocery bill is usually pretty low. Add in an omnivorous adult and suddenly our grocery bill more than doubled. Ugh.

[laurack]

Faevantastic if you are tying ribbons on a cookie favor, how much ribbon length do you need per favor?

[blane12]

I'm sorry TrudyCampbell! I can't imagine!! When do they think you'll get an answer?

[laurack]

May 9, 2017 7:38:58 GMT -5 sunshineluv said:

I either have allergies or am getting a cold, I am really hoping its allergies.

We have fun plans this Saturday (beer bourbon and bbq festival for DH's bday with no kids) I don't want to be sick....

you should hope for a cold crazy person! COLDS END IN A FEW DAYS!!!!!

omg allergies kicking my ass the last few days.. struggling to breathe properly. WHY MUST YOU TORTURE ME POLLEN. I'm INSIDE NOW !!!!!!!!!

[laurack]

I'm sorry TrudyCampbell. When will you hear, do you have any idea? This sounds so difficult.

[sunshineluv]

May 9, 2017 10:19:32 GMT -5 laurack said:

May 9, 2017 7:38:58 GMT -5 sunshineluv said:

I either have allergies or am getting a cold, I am really hoping its allergies.

We have fun plans this Saturday (beer bourbon and bbq festival for DH's bday with no kids) I don't want to be sick....

you should hope for a cold crazy person! COLDS END IN A FEW DAYS!!!!!

omg allergies kicking my ass the last few days.. struggling to breathe properly. WHY MUST YOU TORTURE ME POLLEN. I'm INSIDE NOW !!!!!!!!!

LOL, valid point!

*My allergies are mild when they flare up I take Claritin for a few weeks and am fine.

I hope you feel better soon!

[TrudyCampbell]

laurack blane12 we have to request another meeting, which we haven't done yet, and we are hoping to delay it long enough to have the summer team which would make the meeting in July at the soonest.

We have our neuropsychologist observing Violet at school again today (very $$$$$) so that we have some "new information" to present to the DOE.

What's absolutely giving me a heart attack today is that we got her school placement and it isn't in our zoned school. It's really long and complicated (and boring) but basically this is a curve ball and I have to wonder why it happened. If this other school somehow has a more appropriate class for Violet, it could hurt our case. Our case is basically built upon her need for a 12m program and this letter I got today makes it sound like this new school has that (although I don't think they do, because NYC doesn't offer it, it would have to be brand new). Either way, this is an unexpected step.

Now we have to schedule a time to go visit the new school and class, ask a million questions, and hope to god it's even worse than what we were getting at our zoned school.

This process is going to take months even in the best case scenario, and we are so strapped financially because we have started paying for the private school which is 60k/year. I feel so defeated, ugh. Thanks for reading this.

[laurack]

Oh my gosh TrudyCampbell I'm sorry! Sounds so stressful and expensive.

If the school they now put you in suddenly Does have a good program though would that be definitely bad? Or you just wouldn't trust them?

If you win in the end will they refund what you have paid already?

I hope it works out, sounds terrible

[blane12]

That sounds soooo stressful! You guys are doing everything right, and sound like you have all the right people on your team. I'm sorry they just added stress to you and more work with researching this new school. Hopefully all the money for this observation will help convince the DOE she needs the school you want her in. It's so frustrating to know what's best for your child, and have to work so hard to make it happen.

I am sure you've already looked into this, but are there any scholarships or grants that she might qualify to help with the payments until you get an answer?

I'm really hoping all this works out for you guys!!!

Also, anything you don't want to answer is fine too! I'm fascinated by the process after going through everything with Blake. We don't have near the resources you do where I am.

[TrudyCampbell]

May 9, 2017 11:03:58 GMT -5 laurack said:

Oh my gosh TrudyCampbell I'm sorry! Sounds so stressful and expensive.

If the school they now put you in suddenly Does have a good program though would that be definitely bad? Or you just wouldn't trust them?

If you win in the end will they refund what you have paid already?

I hope it works out, sounds terrible

There's no chance that any of the special ed programs they offer us will be the right fit for Violet. She's just such a unique case because she's cognitively average but has delays. She really needs a specific speech and language based program. Which we luckily have found and by some miracle she actually got in to this amazing school! This school is PERFECT. It has to work out because I can't imagine not sending her there.

In the end, we will be refunded, although it usually takes forever to actually get your money.

[TrudyCampbell]

blane12 def no scholarships although the school is luckily being understand about our financial limitations.

And I'll answer anything!

[TrudyCampbell]

May 9, 2017 12:59:54 GMT -5 Loco Coco said:

I'm sorry TrudyCampbell! That's sounds so hard. You guys are such great parents and advocates for V. I'm crossing all crossables that it's all worked out soon.

Once you work it out is that it until middle school or will you have to fight this fight every year?!

Hopefully not. So, it's complicated, but what we want is a deferral which will give us funding for 5 years with no other issues. WE NEED THIS. We were unable to have our case deferred in our initial meeting, which was hugely disappointing, but we have another chance.

If we don't get the deferral, then we sue the DOE. Most cases settle out of court, so that would be the next thing we hope for. There's a chance it would make it to court. If we win, or if the city settles, yes, we do need to do this again next year. However, we would have a very good chance of getting the deferral next year if we had won a court case previously. At that point, the district kind of hands it over.

[Faevantastic]

May 9, 2017 9:31:40 GMT -5 laurack said:

Faevantastic if you are tying ribbons on a cookie favor, how much ribbon length do you need per favor?

3 inches should do!

[creamsiclechica]

TrudyCampbell, I cannot imagine how stressful all of this is, all the variables plus the astronomical cost out of pocket. You are exceptional parents in so many ways, and I know that doesn't bridge the gap of your hardship right now, but that thread running through all of this is strong and ties it all together and holds tight. So much love to you, and fingers crossed this new school situation doesn't make it harder on you.

Matt leaves early Saturday for a month, and I feel super depressed about it today. It's not the longest, and we'll survive, and it's just training, but the idea of all the solo parenting I have to do, plus all the solo runs I have to miss out on is overwhelming me. I just want to stay in bed all day and sulk.

[TrudyCampbell]

Ruby has a UTI and it turns out it's an antibiotic resistant strain of E. coli and the antibiotic we had her on wasn't working at all. My poor girl! I'm kind of freaking out especially because she is refusing this new antibiotic because it doesn't taste good. And we have to give it every 6 hours for a week

[kkfeb04]

I calmly told a woman to go fuck herself tonight.

Kalvin is in a social skills class at our local pediatric rehab center. It is for kids 7-12 on the spectrum. Tonight the group of 10 or so went to a local sandwich chain (no dinners just sandwich options, not fine dining). I was seated in another section partitioned from the class. Two women came in probably right between the kids ate dinner and before ordering dessert. One child spilled water and was upset but the table wasn't super loud (my two right now are much louder than that group was). A middle-aged woman two tables from me kept getting up to stare at them and shake her head. The fourth time of her doing this, I walked over to her and asked if she had a problem with the table. She complained they were loud so I calmly said, well let me tell you, most of the kids have autism and that is a social skills class. They are learning how to eat at restaurants because parents like me don't go out to eat because of judgmental people like you. I walked away.

[laurack]

this note from Williams teacher today! ❤️️

[laurack]

Fuck that lady kkfeb04! What an asshole

[imimahoney]

I think I am having a minor panic attack over the Comey firing. FUCK

[jaime183]

teamhayes how long is your maternity leave

[jaime183]

kkfeb04 you are such an amazing mom. Good for yoy

[honeybee503]

Thinking of you, TrudyCampbell.

kkfeb04 What a jerk. I'm glad you spoke up to her though.

[teamhayes]

12 weeks

I go back right around Memorial Day

Not sure exact date yet

Whomp whomp

[honeybee503]

I'm currently in the bath, browsing the Target app, and sipping on some wine. I'm so glad I was born in the age of modern technology.