My crappy update (UPDATE in OP. Spoiler: Less crappy)

[k3am]

We did DS's MRI today. The one that was just to check and make sure his freakishly large head is just a freakishly large head. 

It's never good when you get a call within an hour with results. He as a 5cm cyst. We're getting a referral to DD's neurosurgeon to see what course of action, if any, they want to pursue. So yeah. Lots of curse words in my brain right now.

UDPATE: We met with the neurosurgeon today. It was a good appointment. We're on watch and wait. We'll track his head size at regular pediatrician appointments and do a follow up MRI in 18 months. Assuming nothing has changed, we'll basically be done with it. 

We've been told that because of the risk of hemorrhage, contact sports are out, but that whether or not to consider something as "contact" is at our discretion. So football and hockey, clearly contact and out. Soccer and baseball? We get to decide. He would prefer that all children chose sports like golf and tennis, but acknowledges that it's unlikely. 

[supertrooper1]

I'm so sorry.

[kimberlybb]

k3am , so sorry to hear that!! I feel like the universe should owe you a break after all the medical issues with your DD. Thinking of all of you!

[katrine05]

I'm so so sorry! I can't imagine what you are going through right now.

[phdmomma]

Damn, I'm sorry. It's good that they did it just to double check. But at the same time, I think that everyone was hoping that it was nothing to worry about.

[justcheckingin73]

GDI. I’m so sorry.

[erinshelley21]

Shit. I am so sorry that you're doing this again. It's definitely not fair.

[welly01]

I'm so sorry.

[mustardseed2007]

oh geeze. Did they tell you where in the brain? A cyst not a tumor? Or do they not know yet?

I'm so sorry. It's so much stuff. Ugh.

[CrazyLucky]

Oh my gosh. I'm so sorry for what you and your family are going through.

[rere]

So sorry!

[twinmomma]

I'm so sorry. You guys deserve to catch a break!

[waverly]

I am sorry.

[186momx]

No, that wasn't the news you needed or wanted to hear. Hope the neurosurgeon has more info.
So sorry

[k3am]

Nov 1, 2017 13:32:35 GMT -5 mustardseed2007 said:

oh geeze. Did they tell you where in the brain? A cyst not a tumor? Or do they not know yet?

I'm so sorry. It's so much stuff. Ugh.

They told me what part of the brain, but I forgot. Cyst, not tumor. They also referred to DD's first tumor as a cyst and a tumor interchangeably prior to her first surgery. 

It was just so weird.. our pediatrician was out of the office, so someone else called. She started chatting and just threw out 5 cm cyst like she was talking about the weather. I was so shocked I lost about half of what she said. Because 5 cm is huge!

[sweetptater]

I'm so so sorry k3am. You and your family just can't catch a break.

[akafred]

Damn. That absolutely sucks ass.

[Covergirl82]

Oh my goodness, k3am. I'm so sorry!

[leap]

I am so sorry. That just sucks.

[sunbutter]

Oh that sucks. Here is hoping that this is one of those things that just gets observed cause you did the MRI that many of us walk around with and don't even know it because it has no ill effects.

[mae0111]

I'm so sorry. Thinking of you and sending creepy internet hugs and strength vibes.

[xctsclrx]

k3am, omg I am so sorry. Sending good thoughts and hugs. Sucks so much.

[2chatter]

k3am - awful. Surely your break is coming. I hope they get back to you rapidly with clarity.

[traveltheworld]

I'm so sorry. That really sucks. I don't even know what else to say.

Keep us posted.

[ilovelucyvv]

Im so sorry. Ill keep your family in my prayers.

[mommyatty]

Sheesh. Hugs. No idea what to say.

[vasc]

k3am, I’m so sorry. I’m gaping at the chances of having two kids with brain cysts....like it’s already rare enough, but now both kids have had it?!

[campermom]

Shit k3am I am so sorry to hear this.

I'm sure your DD's Neuro staff will take care of you from start to finish. We are here for any bitchin you'd like to unload onto us! Keeping your little guy in my thoughts.

[sandandsea]

Oh my gosh. I’m so sorry. .

[freezorburn]

So sorry. We are here for you.