really GOOD sick kid update!

[NandaB]

Saturday afternoon we were moved out of the PICU and back to oncology. He has no more air or ng tube and yesterday they removed the O2 monitor and annoying stuck on leads! He only has his picc line and 1 iv left. He is finally my happy playful boy again.

They will do an xray tomorrow and as long as his intestines are healed he can finally have something to eat/drink! As long as that goes well he is scheduled to get his picc removed and a port placed during his lumbar puncture on Friday. We should be able to go home soon after that!!

Thanks for all the kind words and support during a really terrifying few weeks.

[momin2013]

I'm so glad to hear this great update - this made my night! Continued positive thoughts and prayers that W continues to make a full recovery!

[nicolewi]

Great news!!!! So glad to hear that he is doing well!!

[charlatti]

So glad to hear the good news!

[jag01]

YAY!!! So happy to hear that!

[erbear]

Great news! I'm so happy for you!

[penguingrrl]

I’m so glad to see such a positive update!

[minerswife17]

Awesome update!

[abs]

That’s so great!!!

[melew]

Such great news!

[gastro]

So happy to hear the good news!

[court26]

Great update!!!!!

[gastro]

NandaB. How’s Wesley doing? How is your family holding up? Thinking of you all.

[NandaB]

Feb 28, 2018 16:39:02 GMT -5 gastro said:

NandaB . How’s Wesley doing? How is your family holding up? Thinking of you all.

Thanks for checking on us. He is doing better. Still on some oxygen but eating pretty well, so thats good. they are going to stop the IV nutrition today or tomorrow so hopefully his appetite will improve and he will want more that soup. He is scheduled for his next lumbar puncture and chemo on friday, so thats good. Oncology wanted to do it today, as his treatment is already been delayed 12 days, but anesthesiology is more comfortable waiting a few more days because he still has pneumonia and is having some breathing issues. Hopefully he will be able to go home after that.