Also, I agree about hospice. I'm still in touch with my Poppy's hospice nurses over ten years later because they were so incredible. They could make him laugh when he was sad and they gave him such dignity, he still felt human and not like a body they didn't care about.
"This prick is asking for someone here to bring him to task Somebody give me some dirt on this vacuous mass so we can at last unmask him I'll pull the trigger on it, someone load the gun and cock it While we were all watching, he got Washington in his pocket."
Post by MixedBerryJam on Dec 8, 2012 21:02:19 GMT -5
I'm very sorry this is happening to your father and to your family. Hospice is there, and it sounds like they're doing their job, to provide care and comfort to your father and to keep his passing as free of pain and fear as possible. But they are also there to support family members, and they have a ton of resources at their disposal. Please don't hesitate to ask questions, to ask for support when you are feeling vulnerable. They can put you in touch with social workers and other care providers who have a lot of experience in this difficult field who will help you all however they can. Hospice workers are a tremendously special breed. I wish your family peace.
I am so sorry tambourine. I know how hard those words are to hear. Hospice workers are amazing... use them for you dad and for you and your family. I hope he rebounds. I wish you strength and peace.
And have no regrets right now. Tell him what you want and ask him what you want. Same with the doctors and nurses. Love him and be with him. And take care of you. Let your dh take care of j and the house and other stuff.
The nurse did say that people can turn around from this state.
I think my mom thinks that if she acknowledges to doctors that he's dying, they will just give up. She seemed to feel more comfortable with this nurse than she does with most docs and nurses. She even let him give her some religion-based comforting words, which she normally does not tolerate. (She is nominally Christian, but doesn't really talk about it.)
YET, she is anti-hospice because she thinks if he has hospice care, nobody will do anything to try to help him get better. I was like, he can have his doctors AND hospice, but she is just afraid to get hospice involved.
Things looked okay recently on the cancer front. I think this is his liver. Mom asked them to send the liver doctor in, because it seems like if you have cancer, everyone red flags you as a cancer patient and doesn't even want to address anything else.
He's sleeping now - still knocked out from the ativan they gave him in the ER.
oh no! That's not how hospice works at all! I'm sure you know this, but it is about promoting and preserving dignity and comfort. Would it help her to know that my grandmother had manicures twice a month as part of her hospice care for almost a year when she was living in a secured Alzheimer's unit? I cannot even begin to imagine the difficult position she is in, or what she is going through, but maybe the hospital social worker and nurses could address this concern for her to help put her at ease.
I sincerely hope your dad turns around, and that he is able to be seen by the doctors he needs. I am so so so sorry. ({) (})