Post by biblionerd on Feb 16, 2014 18:52:38 GMT -5
It's breaking my heart and I miss my baby. Since my stupid inlaws are on their extended vacation I have nobody to watch Linus and Fiona and we can't take them to the hospital with us. So DH took her and I stayed with them. It's a long walk from the garage into the hospital and all over the hospital and I can't carry her that far with my c/s right now (it hasn't stopped bleeding all the way from the c/s yet because I keep overdoing it). so it sadly just made more sense for DH to take her. My little sister is working, my mom is working, Dad would have no freaking idea how to watch them and Fiona is terrified of him, BIL and SIL would be clueless watching them, and my sister "has bad nausea and heartburn from dinner and drinking last night".
So she's still retracting. Not ALWAYS as bad as before, which I thought was a good sign, but now her respirations are creeping up. We were told to call or take her in if they got to 60 a minute. All of last night they were hanging out around 55-65. She seemed to slow down and relax when she fell asleep on her back so we let it go last night, but she started up again this afternoon.
On a related note...
This is all REALLY making me second guess my pedi. I know I'm a worried mother, but it doesn't make sense. First, when we took her in to begin with she said her breathing wasn't normal but didn't check her temp, bp, or check her O2 and just let her go. Then when I called her back to let her know she still hadn't improved she said she needed to get into a pulmonologist asap because she was going to get too tired breathing so hard for so long. I asked if blood work would be beneficial and she agreed. So they referred her to the children's hospital pulmonary and I called on Thurs for the appt and they said the soonest "new patient appt" wasn't until March 3rd!! Even the scheduler said "well she's only 3 weeks old so if she's having breathing issues you might want to make sure your pediatrician is ok with her waiting this long". Apparently they just referred her as a regular patient without any urgency. The scheduler said the dr just has to call herself and they can get her in asap as an urgent pt.
So I called the pedi back and all of a sudden now she said to just see what the bloodwork says before deciding if she needs to be seen sooner. The bloodwork was my idea and before I suggested it she said she needed to be seen right away! Then she called on friday (at the end of the day and I missed it so it went to voicemail) and just said that based on the bloodwork results to just wait until the 3rd appt and that I can call to see if they have cancellations. Sooooo all of a sudden now it's ok for her to keep breathing like this for 2 1/2 more weeks when a day ago she said it wasn't safe for her to do that? My sister talked to the staff dr at the hospital who said it was too long for her to wait and to just bring her back to the ER to get things moving. So hopefully we might get a better answer?? It's so frustrating because everyone (nurses, pediatrician, cardiologist, er resident, er staff dr, and another staff dr) all agreed that it's not normal for her to be breathing like this, but I just want an answer.
First we were told retractions are caused basically by 2 things- anatomical problem (like heart or lungs) or illness. Her bp was a little wonky so they thought it was her heart. Thank goodness it wasn't, but now they said that after 9 days there should have been some sign of a virus if it was that, but there's not. So what gives???
I'm so sorry. You must feel so stressed right now...hopefully the ER will actually give you some answers and you can figure out where to go from there. Hugs.
I'm so sorry from my experience working at a dr office I definitely don't like how your pedi is handling it. Once this is all over I would highly consider looking into other options. In the mean time, I agree the ER was the right choice and I hope they can get you some answers. Please keep us updated! Hugs!
Post by sunshineluv on Feb 16, 2014 19:01:02 GMT -5
Hugs! I would be annoyed with the pedi even just because she seems to change her reaction too often. Is there someone else at the same practice you can talk to or get an apt with? It sounds to me like two weeks is too long to wait, and what the heck does it matter to the pedi to mark it urgent?
Post by biblionerd on Feb 16, 2014 19:15:02 GMT -5
Thanks everyone. Sorry to keep posting about it. I'm glad to know I'm not the only one who would be annoyed by the pedi though. I was afraid I was overreacting, but I just don't like the way she's handling things.
I'm sorry you have to deal with all of this right now and can't be with her. DH had to take Abby to a few ER visits without me and it was rough.
The fact that the pedi recognized she wasn't breathing normally and didn't test her O2 indicates that they're incompetent or negligent. I'd change doctors ASAP and make sure they knew why.
Post by jamaga2583 on Feb 16, 2014 19:32:01 GMT -5
I'm so sorry you're dealing with this. I really hope the ER can give you some answers, or at least get the ball rolling for you to see the right people. I'm totally side eyeing your pedi.
Oh hun, I'm so sorry you are not able to be there with her I hope you are able to get some answers very soon. I would be really concerned with my pedi in your situation. The fact they didn't even check her O2 is really concerning.
Post by biblionerd on Feb 16, 2014 19:34:19 GMT -5
I definitely hope the ER has answers. I forgot to say part of why I'm so sad is because both my sister and her staff dr said that since it's her second time in that they would probably admit her. Not for sure since it's not up to them, but the other dr said a sleep study would be next and that she would have admitted her the first time. So I have a good feeling they'll be staying. I would be sad about the ER visit alone, but I'm mostly sad thinking that she won't be home tonight.
Post by lauranicole91 on Feb 16, 2014 19:38:26 GMT -5
Omg how stressful and nerve wracking. I am so sorry. Poor sweet Ruby. Keep doing what you are doing and fight for your little girl and absolutely trust your mama bear instincts. I am so sorry you aren't able to be there with her. Big hugs to you, I hope you get answers soon.
Ugh I'm sorry you still don't have answers about what is going on. I am surprised your pedi is not more worried about this! When B was having retractions and rapid breathing our pedi was very concerned. She called the cardiologist for us and got us an appointment two days later.
I hope the ER can figure out what is going on. Poor Ruby and poor mama!