Oh goodness ... my heart goes out to you and your family.
The “limbo” feeling is so awful. Different situation than yours, but I experienced that with my dad. That tense feeling is such a weight, on top of all that sadness.
I wish your dad the very best, and I hope you find comfort and peace.
I wanted to say I'm so sorry you and your family is going through this. I understand the feeling of just waiting, and seeing every little piece of good in the midst of fear and grief. The weight of the waiting to me is like torture.
Regarding updates, I think eliminating that late update is a good idea. My brother, mom and I decided the same thing as you did last week, my mom was calling every 12 hours and the 11 pm update was keeping me and my mom up until roughly 230 am because we were too keyed up to sleep. (My brother thankfully can almost sleep on command, ha.) So as much as we wanted the update we eliminated it for my mom's sake of trying to sleep.
I also think there isn't a right or wrong way to handle this, I understand wanting to keep those good memories at the forefront as much as possible. I by no means have the answers but I would say please be gentle with yourself, you're unfortunately in a very taxing situation and you're not "doing it wrong" no matter what you do. What your sister does can be different from what you do. Sending virtual hugs your way, sending positive thoughts for your dad, and thinking of you and your family.
I hope a miracle finds him soon! And he can brag for years and years how he lived through it during the height of the pandemic and was tough and stubborn enough to come through it.
Post by mysteriouswife on Jan 13, 2021 6:24:10 GMT -5
I’m sorry you are going through this.
We had this experience with FIL. H was able to stay with him round the clock. He and SMIL were taking turns. Like you it was hard for H. FIL was in the hospital over 70 days. It’s been two years and he’s doing well. I will be happy to share more details if you want to PM me.
You have to do what is best for your mental health. There is no right or wrong. Ask the hospital for resources to assist family members with this. They may have a support group. Also contact your PCP if needed.
goldengirlz, I am so incredibly sorry that you and your family are going through this. I have been where you are - 2 months of my father in ICU, on a ventilator, following heart surgery. It was a roller coaster of good news and bad news.
Self care is incredibly important to help you get through. If it feels like the right thing to help you, then it IS the right thing. And what is right for you may not be right for someone else. That can be hard when you are in the middle of it all, though.
Post by mcppalmbeach on Jan 13, 2021 8:05:29 GMT -5
I’m so very sorry for what you are going through. I think you need to do what you feel is best for you. My mil died very unexpectedly after complications from a “routine” heart procedure. They were there 24/7 for several days. Keeping a bedside vigil is very emotionally taxing and he relives those moments a lot in his head. Truly wishing your family peace during this time.
I'm an only child and when my mother was critically ill in the ICU I felt I had to go sit with her every day (pre covid). I wish I had given myself more latitude and grace in that regard. While I was there I fell into soduko and read loads of books to take my mind elsewhere. When I was home I would frantically clean and organize. Otherwise it felt like I was walking and pacing and just wringing my hands waiting for something.
Allow yourself to celebrate the small bits of good news. ❤️❤️
Oh, dear, I'm so very sorry things aren't going well. I don't have any advice, other than to see if your mom would be willing to get some sort of temporary sleeping medication rx? Other than that I can offer virtual hugs, thoughts and an ear to listen if ever needed.