I don't have any wise words of advice, but I am sending you so much love and you are always in my thoughts. Whatever decision you make will be the right one.
Prayers of peace and comfort to you and your family. May you be at peace with your treatment decisions, and may you find comfort in your family and they in you.
Huge hugs, his. I personally think I would ask now, because I would need to hear from them that they would be there. It's a difficult decision, but there isn't a wrong decision. It's personal, and your choice to make. Lots of love being sent as you make some tough choices.
You are such an amazing person. I think I would ask people in person but prepared that it will be emotional for both sides. I think it may help you and those you have picked. So many hugs and so much love, prayers and healthy vibes.
I'm really sorry that you have to deal with this shit. I do think getting chemo close to home is better than having to be at MDA. I do understand that if it's a trial, then it's only going on in certain places. However, if it's with drugs that are already approved (as in not phase 1 studies which are the first time the drugs are used on humans), then maybe they could give you that particular combo at home. I'm sorry the peripheral neuropathy is so bad. Do they have you on gabapentin at all? I know sometimes it doesn't help significantly.
What you spoke of is not morbid, IMO. I mean, we are all going to face death. That is certain for each and every one of us. It's just that for most people, they don't know how or when. I don't know what it's like to be faced with knowing for myself. I faced it with those close to me. I think it's absolutely fine for you to ask people to hold certain roles as you wish. I know this is difficult for you and it will be difficult for them too. I think, if I were to be asked to hold such a role, I might appreciate feel comfortable (? hard to find the right term) if the person asking wrote me a little note or something. That way I could process it on my own so that I might be able to have better composure (probably not) and not upset the person asking. Just a thought. You do what is right for you. You know the people that you're asking.
I just want to offer you thoughts and prayers. I wish for you to have strength and be surrounded by serenity and peace throughout all of this.
Post by pistolshrimp on Mar 18, 2017 20:45:42 GMT -5
I've opened this post multiple times and didn't want to not respond, but I don't know what to say. Whatever you decide to do will be the right choice because you're doing it with the very best of intentions. The courage you are showing in facing this, although you have said you don't feel it, is extraordinary. This community is better because of your kind, selfless and caring personality, I can only imagine how strong a presence you are in your family and faith community. I've been keeping you in my thoughts and prayers.