Post by teatimefor2 on May 21, 2015 20:27:00 GMT -5
So many hugs, Brie. You are an amazing mom, give yourself time to adjust and remember baby steps for you, your DH and P.
CP is not my specialized field of LD, but I know a fair bit about it and have links to those who do. I know you have amazing doctors, but when your ready reach out to your local and nation CP organizations. They exist to support P and your whole family.
Brie I'm sorry. I know it's really scary! I've taught several kids with CP who have typical intellectual capabilities and few physical limitations! Keep your head up- there will be early interventions available for p and I'm sure he will thrive.
Post by thatgirl2478 on May 21, 2015 20:54:13 GMT -5
I'm sorry.
I don't know if you want 'life' stories, but my husbands uncle is 80 yrs old and has cerebral palsy. He lived a pretty ordinary life, he helped out on the family farm, held a job, learned to drive a tractor/golf cart, lived on his own (albeit behind my MIL), cooked for himself, etc, until a few years back when he was falling more easily and not as mobile. He went to live in a nursing home where he's really REALLY happy - his speech has improved because he spends SO much time talking to everyone, he's in a wheel chair, but it doesn't stop him from getting around and going places.
Hugs to you. My sister in law has CP, and she has a full-time job, just bought a house (that she lives in independently), and babysits my DD all the time. I know every case is different, but I just want you to know that people with CP can have normal, awesome lives!
Post by DarcyLongfellow on May 21, 2015 21:42:39 GMT -5
Oh, Brie, I'm so, so sorry. I know if I were in your position I would be raging at the universe with the unfairness of it all. Which wouldn't help anything.
You have handled all of this with amazing grace. You are a wonderful mother, and I know P will thrive with all the care he will get from you and your H.
I'm so sorry. I know you hear this a lot, but P is lucky to have you. Getting diagnoses is gut wrenching. I'm at the beginning stages of this stuff as well. I wish I had more advice, but I just wanted you to know I can somewhat relate to stress and weight of what you are going through. ((hugs))
hugs @brie That is a really shitty day. I hope the diagnosis will open up many resources to help P and give you and your H the support you need. You can do this! You are already doing it and you are doing a great job.