P has it. They can't officially diagnose it until he's 2 but he has it.
It's not a great shock because it's just a blanket term for mobility impairment plus brain injury which we both knew about but it still feels like a punch to the gut.
He is going to get a hand brace soon. If his muscle tone doesn't improve in 3 months he will be starting some pretty heavy muscle relaxers. Official diagnosis is dystonia of the lower body and spasticity in the upper.
Also the dentist found a cavity this morning and I got rear ended and we dropped $200 to repair our leaky shower. Fuck this day in particular.
Anecdotes: my grade school BFF has CP and lives a very normal life with a husband, son and high profile job. She is gifted, kind and accomplished. The only complications she had with CP is that she walks with a slight limp and it was sometimes harder for her to get independent insurance pre-Obamacare.
Post by noodleskooze on May 21, 2015 14:54:13 GMT -5
Oh, Brie. What a shock. I hope this at least gives you all a clear path of treatment and an official dx gets you all the assistance you need. I have no doubt that P will thrive despite this news.
Post by longtimenopost on May 21, 2015 14:54:52 GMT -5
So many hugs. It is just a label for him to get the help he needs.
As for the hand brace, we had both a benik and a McKie splint and MUCH preferred the McKie splint, especially at that young age. It allows for much more sensory input.
So many hugs. It is just a label for him to get the help he needs.
As for the hand brace, we had both a benik and a McKie splint and MUCH preferred the McKie splint, especially at that young age. It allows for much more sensory input.