You and your family are in my thoughts and prayers. I also think you should look at the rush from MD Anderson as a good thing. They don't waste resources on people that they don't feel like they can help. This is a good thing, they view you as someone they can help.
I also urge you to tell your family the true scope of what is happening. It will help them prepare mentally and help them make an informed decision about how they prioritize their time. They may choose to spend time with you as opposed to some other activity if they know the full scope of the situation. And they will be glad they had the opportunity to make those decisions and make the most of the time they have with you. And I think it will lighten your burden. Carrying secrets by yourself can carry a heavy weight. Lighten that load so that all your energy can be spent fighting for more time with your loved ones and enjoying that time.
Praying for you and your family. I agree with someone else being the informational point person. You tell them what you're comfortable sharing and they help protect your time and emotions. Sending light and love to you.
hisno1girl, another option might be to appoint someone as the information relay-er as PP discussed and have them set up a caring bridge site. A friend did this when her son was sick and it was a GREAT way to get information to people. There were 3 people that could post updates; herself, her other son and her son's girlfriend.
Post by themoneytree on Feb 3, 2017 21:26:07 GMT -5
Hugest hugs to you. Please share with your family, this isn't a burden you need to carry alone. Let them know everything so they can love and support you.
Oh, man. I don't know what to say, I keep drafting. Md Anderson is supposed to be awesome, so maybe the drs are just rushing bc they know that. Love you, v