My cancer

[sweetchix]

First of all, thank you everyone for your well wishes. They are very much appreciated.

I didn’t want to derail the fandoms thread more than I already have, so figured I’d create my own thread.

I am shocked at the news today because just last week I was told it was NOT cancer. Still trying to digest the news. This is a lot so sorry if I ramble.

They called it a GIST (gastrointestinal stromal tumor) and said that started it the muscle near/on my stomach. Surgery will consist of removing part of my stomach. They may also need to remove a part of my pancreas and my spleen, depending on how attached the tumor is to them. However, they won’t know for sure until they’re in there. Either of these being removed/partially removed will cause life ling changes to me.

They were hoping to do chemo to shrink it down first to be as invasive as possible and to remove a smaller section of my stomach. However, there is a mutation in the tumor that will not respond to chemo.

If it’s just removal of the tumor and part of my stomach, it can be done robotically with small incisions and will take about 3 hours with 2-3 days in the hospital. If they need to remove any part of my pancreas or spleen, it will likely mean they have to cut me open and will take 5-6 hours with 5 days in the hospital.

With clear margins after removal, I should have no other issues related to this. If not, I’m not sure what options we’d have since it won’t respond to chemo.

All 3 people I talked to today (PA, doctor, someone else I don’t know her job) seemed optimistic and from what they could see on all the scans I had, it is confined to this one, albeit large, tumor.

I am shocked and scared, but hopeful the surgery will be a success and no further follow up is needed.

Please send me all the good things - vibes, thoughts, prayers - you can. Thank you! ❤️

[slbride2003]

I’m so sorry you are going through this. Will be keeping you in my thoughts and prayers.

[mofongo]

((sweetchix)) I’m sorry, what a horrible rollercoaster. Use us as much as you need to for support, encouragement, and venting!

[AAM2012]

I’m so sorry you’re going through this! Sending you hugs and positive vibes.


I’m going through something similar with anemia and have celiac but have been putting my head in the sand in making an appointment. If you’re willing to share, was your initial visit with a gastroenterologist and/or how did they come to that conclusion? I tried to stalk your prior posts and couldn’t figure it out.

Again, you don’t have to share if you don’t want to.

[Roc A Bee]

Thinking of you! And sending all the good vibes.

[icedcoffee]

I am so sorry. You are in really good hands at Roswell. They are top notch. Sending you love and strength.

[heygrey]

I am so sorry your are going through this. I hope it is as uncomplicated as they expect it to be and your recovery is quick and complete.

Did they have you an expected timeline for surgery?

[goldengirlz]

I’m so, sorry sorry to hear this. Sending good thoughts that your surgery goes well and it’s the best case scenario.

[wanderingback]

Thinking of you.
I hope you have the support you need <3

[mags]

I'm so sorry that you have to deal with this. Sending healing vibes.

[mysteriouswife]

I’m so sorry.

[jackie011]

I’m very sorry to hear about this. I want to reassure you to have faith in your medical team. With my DH’s diagnosis we were told early on not to google and not to borrow worry, and we’ve tried to stick to those rules. This community is fantastic and here for you!

[cmeon]

I'm sorry you got such scary news, that must have been really tough after hearing that you didn't need to worry. It sounds like you are in very good hands (maybe even robotic hands!) and I really hope it's a simple and easy surgery that spares any parts you want to keep!

[loira]

I'm sorry you're dealing with this. We are here for you! ❤️

[pumpkin]

Thinking of you with healing thoughts, vibes, and prayers.

[sonrisa]

I'm so sorry. Sending good vibes.

[expatjen]

Wishing you healthy vibes and clear scans after they remove the tumor.

[Bad Dingo]

I can't even imagine what you are feeling right now. Please let us know if there is anything that we can do. Do you have local support?

[momin2013]

Sending lots of positive thoughts your way. It sounds like everyone was optimistic, which is a good sign.

[underwaterrhymes]

I’m so sorry you’re going through this. I am keeping you in my thoughts that the surgery goes as smoothly as possible and that they get clean margins. ❤️

[ssmjlm]

Sending you lots of healing vibes.

[pierogigirl]

Thinking of you. I am sorry this is happening to you and I hope the surgery resolves the issue completely.

[charlatti]

I’m so sorry you’re dealing with this. Huge hugs and definitely thinking of you.

[Bernadine]

I’m so sorry. Keeping you and your family in my thoughts!

[cap]

I’m so sorry. I’m hoping for the best!

[fivechickens]

I am so sorry! You and your family will be in my thoughts.

[deadwing]

I'm so sorry about your diagnosis. I hope your treatment is a success.

[Deleted]

I am so sorry that you are going through this. Sending you so many healing vibes.

[Wallflower]

sweetchix, I am so sorry you are facing this. I'm sure it's incredibly scary and I wish I could lift that burden. I'll be keeping you in my thoughts.

[minzy]

Thinking of you. I hope your treatment goes as well as it possibly can.